CBTF welcomed families to the annual Family Retreat Day at Glen Echo Park, Glen Echo, Maryland on Sunday June 23 for a fun-filled day that offered families a time to come together to enjoy fellowship, activities, and family fun.

Once again, outstanding volunteers provided arts and crafts for the kids while parents attended information and support group sessions.  Elizabeth Wells, MD, Neurologist, Children’s National Medical Center provided vital information in a session entitled, Pediatric Neurologic Sequelae of Brain Tumors: Update on Research and Management in the morning and support groups explored Surviving and Thriving After a Brain Tumor with Katarina Steacey, NP from George Washington University Hospital and brain tumor survivors, Navigating  Brain Tumor Treatment:  How can we Make it a Better Journey?, Debbie Lafond, and Love, Laughter, and Remembering Dealing with Grief and Loss with Debbie Lafond  and Phil Carpenter in the afternoon. Fun activities included the Puppet Company’s Bathtub Pirate puppet show, carousel rides, and a photo booth.  Many thanks to all the wonderful volunteers and medical professionals that make this Family Retreat Day a resounding success!

In 2008, Amy Boyle’s friends, (age 12) formed Amy’s Amigos in tribute to their friend Amy Boyle, a classmate that was battling a brain tumor.  Amy was a high spirited young lady that was athletic and enjoyed life.  In 2011 after Amy’s death, Amy’s Amigos held their first Reston Youth League Triathlon in the hope that funds raised would support important research initiatives.  On May 12, 2013, the Be AMYazing event was held at South lakes High School and was met with the same enthusiasm and was sold out ahead of the event date! Amy’s friends with the support of the community has raised $32,000 over the past three years. This year $16,000 was raised!

CBTF and families thank AMYazing, Reston Youth Triathlon, sponsors, and supporters of this exciting event!

On May 17, Dwellus Group gave back to the community again and hosted their 4th Annual Dwellus Charity Golf Tournament on behalf of the Childhood Brain Tumor Foundation and in honor of Jackson! The event was held at the Pleasant Valley Golf Course, Chantilly Virginia and was a great success, raising over $9,000.  Sponsors included, Chick-fil-A, First Savings Mortgage, Champion Title, George Mason Mortgage, LLX, Keller Williams Realty, Thadson Flooring, 123 Junk, Cindy Zook Associates, Finding Solutions Counseling Centers, Alliant, and HMS Home Warranty.  A continental breakfast, lunch, goodie bags, silent auction, and raffles were included as part of the day.  It was a beautiful day and the efforts of everyone involved were greatly appreciated.  Special thanks to Ryan Zook and the Dwellus Group!

Our friends at John Paul II, event organizers, and eager participants in Houston, Texas are getting ready for the annual Run with the Saints 5K.

In loving memory of Lauren Lockard. The 5k race will be on Saturday, November 1, 2014 at 8:00 AM. There will also be a "Kids' K" that will begin at 7:30 AM.

This year, in the US, over 13,000 people will die from brain, spinal cord, or other nervous system tumors. Many of these victims are young children. Aggressive research supported by the Childhood Brain Tumor Foundation is helping to reduce this tragic number.

In 1999, a vibrant and talented sixth-grade student at John Paul II Catholic School in Houston, Texas was taken by this disease. Lauren Lockard’s family, friends and faculty have vowed to fight this disease while keeping Lauren’s memory alive through a spirited community event. Continuing this promise, Date to be determined, John Paul II Catholic School and the friends and family of Lauren Lockard will be hold the next Annual Run with the Saints Lauren Lockard Memorial 5K Run. Proceeds from this event will directly benefit the Childhood Brain Tumor Foundation and the John Paul II athletic program, which was very important to Lauren.

Run with the Saints is one of the few races run in West Harris County, Texas! The 5K course winds through the beautiful tree-lined neighborhood streets around John Paul II Catholic School, near Briar Forest Road and Highway 6. Parking is available on streets around the school.

This 5K event allows our community to demonstrate extraordinary strength and camaraderie. Everyone is welcome to come and participate in the 5K by running, walking and volunteering date to be determined, so please invite your friends.

Click here to visit the Run with the Saints home page and register to race, volunteer, or make a donation.

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

2013 Be AMYazing Reston Youth Triathlon

Dwellus Charity Golf Tournament

2013 Family Retreat Day

Abstract: Survey of long-term follow-up programs int he United States for survivors of childhood brain tumors

Links and Resources

...and more!

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

CBTF's Family Retreat Day

Grant Programs funded by CBTF

VFW Ladies' Auxiliary Donation

Tennis for Tumors

Links and Resources

...and more!

The article you requested has been retracted. We apologize for the inconvenience.


Welcome to the Childhood Brain Tumor Foundation web site! We are pleased to continue to fund research to find a cure for this devastating disease. It is only through fund raising that we are able to fund medical research on Childhood Brain Tumors and provide hope for families. Please consider donating or volunteering to support CBTF.

Site Search is a terrific tool for finding information. The site is organized into three main areas:

Patients and Families has support and resources to help cope with the challenges of a childhood brain tumor. In this area also are the fundraising events so critical to CBTF's research funding.

Medical Information has technical information about diagnosis, treatment, late effects, and clinical trials.

The Researchers area has information about the CBTF grant process, Grant summaries, and a history of funded grants.

Please take a moment to explore the new site and let us know what you think!

Remember to visit us on Facebook and help spread the word.

The Childhood Brain Tumor Foundation (CBTF) has funded state-of-the-art research and supported conferences for pediatric brain tumors over the past 19 years. Grant Applications submitted during our open Grant Application period are are reviewed thoroughly by our dedicated team of renown scientific advisors. CBTF selects only the highest quality research for pediatric brain tumors.

  • Our process is based on National Institutes of Health review standards, led by Dr. Roger J. Packer, founding advisor and chairman of the advisory.
  • Advisors are assigned applications to ensure there are no conflicts of interest.
  • Our dedicated advisors voluntarily review, score, and summarize each application.
  • The Advisors hold a teleconference call to discuss the applications.
  • They make recommendations to CBTF after the full review.
  • The CBTF Board discusses the recommendations and overall review scores/summaries and collective comments before voting on which applications will be selected for funding.

Each year, we receive many outstanding applications, but cannot fund all. It is through the support of private and public donations that CBTF is able to fund grant programs.

With your support, together, we will strive to find a cure for childhood brain tumors.

The Grant Application period for 2014 is now CLOSED. Funded grants will be announced later this summer.

The 2015 grant application will be announced in the Fall of 2014.



The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

Dance Marathon in Memory of Sam Moore,

Walkin With Gabriella raises $11K,

Second Chance Band Concert raises $6500,

Family Retreat Day scheduled for 2013,

Links and Resources

...and more!

Thanks to Our Sponsors