Privacy Policy Statement

Privacy Statement

Childhood Brain Tumor Foundation (CBTF) respects and recognizes that protection of privacy is one of the most important issues for Internet users. This statement about our information privacy practices is to ensure that users of the Childhood Brain Tumor Foundation’s website (www.childhoodbraintumor.org) understand how personal information that is collected from our website is used.

The Information We Collect
To enable you to receive communications from us, we request that you join our mailing list and share your e-mail address wih us. We may collect personally identifiable information from you if you become a volunteer, request information, or donate to CBTF.  Information collected may include:  your first and last name, street address, city, state, zip code, telephone number(s), and e-mail address in connection with any request and/or donation you choose to make to our organization. We also may collect certain non-personally identifiable information when you visit many of our web pages such as the type of browser you are using (e.g., Firefox, Internet Explorer), the type of operating system you are using, (e.g., Windows 7 or Mac OS) and the domain name of your Internet service provider (e.g., America OnLine, Hotmail, G-mail).  CBTF does not collect personally identifiable information from you unless you provide it to us voluntarily and knowingly. 

How We Use the Information
Childhood Brain Tumor Foundation does not sell, rent, or exchange any information with third parties that is personally identifiable information that you provide about yourself online without first obtaining your permission. Personally identifiable information you provide about yourself is soley used in response to your requests for information about issues concerning childhood brain tumors and to for CBTF to provide information about our organization. We sometimes use this personally identifiable information to communicate with you, such as to notify you of our fundraising efforts or to inform you of changes to our registered user agreements. We also may use such information, combined with information from outside records, to send you our newsletter or to communicate with you via postal mail.
Health-related information is considered privileged and confidential.  CBTF will not share or release your information to any organization or business entity. We have a strict privacy policy.

Information also is used to generate demographic summaries of Childhood Brain Tumor Foundation’s user base. It may be disclosed in summary form only to third party development partners and industry supporters for the expressed purpose of evaluating overall system utilization and funding opportunities. These summaries never contain information that could identify an individual user.

Non-personally identifiable information that we collect is used to analyze site usage and to improve the design and content of our site.

Unless you explicitly authorize us to do so, we do not share personally identifiable information with third parties, other than in response to legal process or when we believe in good faith that the law requires it, for example, in response to a court order, subpoena, or a law enforcement agency’s request.

Links Posted on our Website
Although the CBTF includes Internet links to other websites, the privacy policy above only applies to the use of the CBTF website.  CBTF does not disclose any personally identifiable inforamtion with the links we have provided and we are not responsible for the privacy practices of those sites. Read the privacy statements associagted with those sites to learn about their policies.  Linking to other sites is not intended to imply that CBTF endorses the associated site's materials or policies.  

Cookies
Childhoodbraintumor.org uses "cookies" to enhance your experience with our site. Cookies are text files we place in your computer’s browser to store your preferences. We cannot use our cookies to determine any personally identifiable information about you. We use cookies to understand site usage and to improve the content and offerings on our site.

Your Choices
If you prefer not to receive newsletters from us, please send a request marked “unsubscribe” to This email address is being protected from spambots. You need JavaScript enabled to view it. .

CBTF's Commitment to Security
Childhood Brain Tumor Foundation has ppropriate security measures in place to prevent unauthorized access to information that we collect online.

Reviewing Your Information
You may review your personal information that we have collected online and that we maintain in the ordinary course of our operation and/or request correction of any erroneous or outdated information by sending a request to This email address is being protected from spambots. You need JavaScript enabled to view it. .

Changes in Our Privacy Policy
If we materially change our practices in handling personally identifiable information as described in this notice, we will notify you by changing this notice and posting the changed notice at our website.

How to Contact Us
If you have any questions or concerns about the privacy policy for childhoodbraintumor.org or its implementation, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it. .

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