Courage, determination and compassion are words that come to mind when thinking about twins Larry and Judith  Theriault of Peabody, Massachusetts. Now thirteen years old, Larry and Judith are living with neurofibromatosis  (NF 1). Diagnosed at 6 months of age and first manifesting optic nerve gliomas at age 2 and 3 respectively, Larry and Judith consistently make the most of life despite the challenges that each child faces on a daily basis.
  We took our daughter, Hayley, to the general practioner on Wednesday as she complained of a headache. He told us that it probably was a virus but to bring her back in Friday. My last question was, “Could it be a brain tumour?” Was it mother’s intuition?
  After the age of three, Vanessa really started slowing down in growth. Soon her younger sister caught up to her and then grew taller than her. They were wearing the same size  clothes and for a while I was dressing them as if they were twins. Then Vanessa fell behind even further. I questioned  her pediatrician and told him that we were worried, and he told us she was just going to be small. She also began having headaches. First the pediatrician told us it was probably allergies, then that we were maybe giving her too much chocolate. He…
              My diagnosis with two brain tumors thirteen years ago was a shock. How could this be, I wondered? For so long the fact that there was "no" tumor had afforded me a sense of comfort and security which helped me through some of the most trying neurological sagas related to hydrocephalus of my childhood. But this all changed one spring day in 1989 with the news that I had two brain tumors.             The first surgery was two months before I was supposed to leave for college with a second, more complicated procedure following…
My name is Kyle Killeen, I’m 17 and in my senior year at Mater Dei High School in New Monmouth, NJ. Being a teenager is a lot of fun, but it can also be pretty stressful sometimes, especially if you feel that you’re different from all your friends. That’s how I felt for a long time. I stopped growing when I was about 13 and the headaches that I had lived with most of my life became unbearable. Most mornings I could barely lift my head up, the pain was so intense. On several occasions the headache was so severe…
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