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Axistive
Axistive provides assistive technology, such as books on tape, recordings, sound reproducers, and other helpful technologies.
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Central Brain Tumor Registry of the United States
Central Brain Tumor Registry of the United States provides statistcal reports about brain tumors and facts.
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BraveKids
Online Resources for Children with Chronic or Life-threatening Illnesses and Disabilities
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The Childhood Cancer Ombudsmen Program (CCOP)
The Childhood Cancer Ombudsmen Program (CCOP) provides Ombudsmen support for families dealing with insurance, educational, and employment issues. E-mail and we will connect you with one of our resourceful Ombudsmen.
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Brain Tumors and Fatigue
Article sponsored by the Brain Science Foundation. What are some possible effects of brain tumor fatigue? Why does fatigue develop? Self-care techniques that can help with fatigue.
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Center for NeuroSkills
This site provides information about traumatic brain injury. In addition, graphics, animations, rehabilitation information, and other helpful materials are included.
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FindCancerExperts
Successful cancer treatment depends on an accurate and correct diagnosis. FindCancerExperts refers patients for expert second opinions to nationally recognized pathologists-- specializing in all types of cancer diagnosis. FindCancerExperts is a rapid, confidential, and free service.
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Neuropsychology Central
Neuropsychology Central offers links and resources for a variety of brain disorders, including brain tumors and ADHD. This site offers links to other medical institutions for consultations and assessments.
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MedicineNet.com Brain Tumor Index
This site provide information about brain tumors and other cancer topics.
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American Music Therapy
Music Therapy, a healthcare profession,uses music to address physical, emotional, cognitive, and social needs of individuals. Music therapy improves the quality of life for persons who are well and also meets the needs of children and adults with disabilities or illnesses.
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Child physiology how the body works
This educational resource provides an overview of brain anatomy, csf circulation, blood supply and brain illnesses. A section is included for caregivers and families.
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National Dissemination Center for Children and Youth with Disabilities
National Dissemination Center for Children and Youth with Disabilities (NICHCY)is a central source for children and youth with disabilities. This site includes information pertaining to: disabilities in infants, children and youth; IDEA (legal rights for special education; No Child Left Behind for children with disabilities; and research based information.
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National Center for Complimentary & Alternative Medicine
An overview is given explaining complimentary and alternative medicine.
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Progress Review Group Report (NINDS)
Both the NCI and NINDS have the full Brain Tumor Progress Review Group posted on their websites. A CBTF patient advocate participated in these meetings.
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Pain.com
This site provides pain resources, a pain library, and answers to many question.
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American Board of Medical Specialities
A database where board certification of physicians can be verfied at no charge. Correct spelling is necessary.
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Schakowsky: National Brain Tumor Awareness Month
Washington, D.C.--U.S. Representative Jan Schakowsky, a member of the House Energy and Commerce Subcommittee on Health, delivered the following statement on the House floor today in support of H. Res. 1124, a resolution to establish a National Brain Tumor Awareness Month.
Childhood Brain Tumor Foundation was amongst the groups that signed on in support of this resolution.
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Needy Meds
A resource for individuals who do not have health insurance or cannot afford their medications. This site provide information for patient assistance programs and other resources.
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Sticker shock a side effect of cancer remedies
As chemo prices rise, doctors get first guidelines on discussion affordability.
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Surveillance, Epidemiology, and End Results (SEER)
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