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The Childhood Brain Tumor Foundation (CBTF) was founded by families, friends and physicians of children with brain tumors. Our mission is to raise funds for scientific research and heighten public awareness of this most devastating disease and to improve prognosis and quality of life for those that are affected.

CBTF BEGINNINGS

Founded and incorporated in Virginia, relocated to Maryland, the Foundation (a 501(c)(3), strives to meet the goals of our mission. Friends, families, and physicians brought CBTF together and are dedicated to serving the needs of families and children with brain tumors, in hopes of improving the quality of life and find cures for pediatric brain tumors. Annually, CBTF funds basic science or clinical research; conferences and other programs.

We provide informational materials on our website and mail other information (nationally and internationally) upon request. If you would like to receive information; need a resource list; referrals to experts for consults; or join our mailing list; please contact us with your name; address; phone number; and e-mail address. Any personal information we collect is kept private. We do not sell, rent, or distribute our list to anyone.

Some families do submit stories and photographs for our newsletter and they may be posted on our website unless requested otherwise.

Please feel free to contact us:

CBTF, 20312 Watkins Meadow Drive, Germantown, Maryland 20876
Telephone: 301-515-2900 Toll Free: 877-217-4166
E-mail: This e-mail address is being protected from spambots, you need JavaScript enabled to view it

CBTF is a nonprofit 501(c)(3) all-volunteer
organization, founded in 1994.

CBTF is not responsible for the information on the links we have selectively posted and are not endorsements. The information on our website is not a substitute for medical advice. Information may be subject to change.

Board Members:

Jeanne P. Young, President
Gilbert P. Smith, JD, Vice President
Michelle O’Brien, Secretary
James M. Young, Treasurer

Directors:

Neil Conley
Carol Cornman
Bridget Hestand
Debbie Rosenbaum
Kiren Shaw
Claire Wynn

Special Scientific Advisor:

Gil Smith, Ph.D., Bethesda, MD

Legal Advisor:

Frederic Rickles, Esq., NY

Advisor - Survivorship:

Aziza Shad, M.D.
Georgetown University Hospital

 

 

Senior Medical/Scientific Advisor:

Roger J. Packer, M.D.,
pediatric neurologist,
Children’s National Medical Center,
Washington, D.C.

Medical/Scientific Advisors:

Susan M. Blaney, M.D.
pediatric oncologist
Texas Children’s Cancer Center
Houston, TX

Francisco A. Bracho, M.D.
pediatric oncologist
Georgetown University Medical Center
Washington, D.C.

Derek A. Bruce, M.D.
pediatric neurosurgeon
Washington, D.C.

Peter C. Burger, M.D.
neuro-pathologist
Johns Hopkins Medical Center
Baltimore, MD

Kenneth J. Cohen, M.D.
pediatric oncologist
Johns Hopkins Medical Center
Baltimore, MD

Paul G. Fisher, M.D.
pediatric neuro-oncologist
Stanford Cancer Center
Stanford, CA

Marianna Horn, M.D.
pediatric oncologist,
Fairfax Hospital, Fairfax, VA

George Jallo, M.D.
pediatric neurosurgeon
Johns Hopkins University Hospital
Batlimore, MD

Tobey J. MacDonald, M.D.
pediatric oncologist,
Children’s National Medical Center,
Washington, D.C.

Brian R. Rood, M.D.
pediatric oncologist
Children’s National Medical Center
Washington, D.C.

Eva Perdahl-Wallace, M.D., Ph.D.
pediatric oncologist,
Fairfax Hospital, Fairfax, VA

Katherine E. Warren, M.D.
pediatric oncologist,
Bethesda, MD

Community Representatives:

Rachel Baron, MD
Mary T Callahan, TX
Doug & Lydia DeFeis, FL
Michael Greenspun, MD
Danielle Kerkovich, IL
Kyle Killeen, NJ
Peggy Killeen, NJ
Danielle Leach, MD
Kate Lund, CT
Cady Lyon, MD
Pat Macy, NY
Barbara Norris, MA
Carol A. Parham, CT
Linda Quackenbush Turner, UT
Pat & Kevin Schlosser, IN
Andrew Schoenfeld, CA
Michael Shoenfeld, DC
Richard & Dorothy Suberg, TX
Brittany Truitt, FL
Cindy Truitt, FL
Nancy Ward, IL
Caitlyn Whitt, TX
Susan M. Young, MD
Beth Zermani, MA

 


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