The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

Fall 2014 Events

Run with the Saints

Be AMYazing

16th Annual International Symposium on Pediatric Oncology

Progress Summary: Evaluating the efficacy of Casein Kinasela agonists on medullablastoma recurrence

...and more!

Physical Activity for Cognitive Effects - NEW RESEARCH STUDY
A new protocol is open at the Pediatric Oncology Branch of the National Cancer Institute for children, ages 8 to 17 years, who have had a brain tumor that was treated with radiation at least 2 years ago. This study is evaluating whether a novel home physical activity program improves cognitive late effects, which may include difficulties with attention, memory, and processing speed. Previous research has shown that increases in physical activity can result in improvements in brain function and cognitive skills.
This study will involve a pre-study evaluation at the NIH (a short cognitive evaluation, fitness testing, and a blood draw), a 12-week home physical activity program (using an activity monitor and website to track one’s progress), and a follow-up evaluation at the NIH. Eligible children will be randomly assigned to either a group getting the physical activity program or a group doing their usual physical activity. After completing the follow-up evaluation, the group first doing their usual activities will then do the physical activity program while the other group will be asked to continue doing the program for 12 more weeks on their own. All will complete a final brief cognitive assessment. We hope that the home program, which we will plan to fit to your child’s favorite physical activities, will help to improve cognitive functions, as well as physical health, and be fun to do. We also will offer a small compensation for children who complete the study, and they will get to keep their activity monitors.
If you might be interested in participating in this study and would like more information, please email Dr. Pam Wolters (This email address is being protected from spambots. You need JavaScript enabled to view it.) or Brittany Abel (This email address is being protected from spambots. You need JavaScript enabled to view it.) or call us at 301-496-0561. We look forward to hearing from you!
It was our pleasure to hold our 19th fundraising Casino Gala on Saturday, November 23, 2013 at the beautiful Manor Country Club in Rockville, Maryland.
This annual event is held in honor of all of the children who have fought or have a brain tumor diagnosis. The evening included many activities: buffet dinner, casino games, silent auction, live music and dancing, and an open-bar. The casino was packed with supporters playing blackjack and craps. The auction included great items and many drew competitive bids.
Special thanks to all of our event supporters and sponsors: Whittle Physical Therapy, Herson’s Honda, Kelley Bula Memorial Scholarship, several dedicated anonymous Hero Sponsors.
This year, our musical entertainment was provided by New York group, The Giant Flying Turtles. We are deeply appreciative of the dedicated efforts of our longstanding volunteers and new volunteers. Each year, our Casino dealers, Anne Gallagher (flowers), Owen Lyon, Yvonne and Michael Soghomonian, and Board members volunteer their time to make the evening a great success. Special thanks to return volunteers Mandy Bell, Tricia Whittles and Jillian Vardy; and this year’s support efforts from Kathleen Bula.
Our November 22, 2014 Gala marks our 20th year of funding scientific and/or clinical research, providing educational materials and conferences or Family Retreat Days for families. The event will again be held at the exquisite Manor Country Club. We look forward to seeing our regular event supporters and new supporters this year. If you know in advance that you plan to attend let us know ahead.

The annual Be AMYazing Triathlon for kids was held on May 11, 2014 and the event started at Ridge Heights Pool. This year marked the fourth memorial event. The event was founded by South Lakes High School seniors, Olivia Wolfe, Han-nah Becker, and Kacey Hirshfield. Amy’s dear school friends have played a sig-nificant role in helping keep Amy’s memory alive since she lost her battle in 2008 when they were classmates at Hunter Woods Elementary School. Funds raised from this event will be dedicated to research for diffuse intrinsic pontine glioma..

Watch this recent WUSA 9 video.

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

2013 Run with the Saints

2013 Casino Gala

Clarksburg Dance Marathon

DIPG: Clinical Features and Ongoing Discoveries

Links and Resources

...and more!

Years of dedicated efforts have been voluntarily and freely given to sustain the Childhood Brain Tumor Foundation and its mission. The supporters, renown advisory, and countless volunteers that have embraced our mission to fund research in hope of cures and improved quality of life for children affected have helped us succeed in funding excellent research programs over the past twenty years.

Download the flyer and RSVP form HERE.

Casino Games • Silent Auction • Buffet Dinner • Live Band and Dancing

Join us for the 20th annual Casino Gala at luxurious Manor Country Club in Rockville, MD and help us raise funds to support our fight against childhood brain tumors! This annual event is held in honor of all the children who have fought against this devastating disease. Support for this fund-raising event will benefit patients and our funding initiatives for research programs. The gala is an action-packed event with many activities:

  • Buffet Dinner
  • Casino Games
  • Silent Auction
  • Live Music and Dancing
  • Open Bar

Save the Date:

When: Saturday, November 22, 2014
Hours: 7:00 PM - 11:00 PM
Where: Manor Country Club, Rockville, Maryland
Activities: Games, buffet dinner, live music, open bar, terrific silent auction!


The casino is managed by our expert blackjack dealers and pit boss craps to make the games exciting.  We look forward to seeing our supporters in November.  If you know of potential sponsors please have them e-mail the Foundation:  This email address is being protected from spambots. You need JavaScript enabled to view it.

Best wishes for a safe and happy holiday season.



The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

2013 Superheroes 5K and Kids' Fun Run

Geoff Cornman Golf Tournament

Tennis for Tumors

Grant Awards 2013-2014

Links and Resources

...and more!

Join us for our annual CBTF SUPERHEROES 5K on Sunday, October 19, 2014 at Meadowbrook Park, Candy Cane City, Chevy Chase.

Gather your friends and create a 5K team to run with us and help fund vital research initiatives.

Sponsoring or creating a team enables CBTF to fund important research to help treat and cure childhood brain tumors, as well as support patients and their families through resources like this site.

2014 Superheroes 5K Registration:


MAIL-IN FORM: Click here for the mail-in registration.

Create a virtual team if you cannot join us...but we hope to see you on race day!

  • 5k certified course is a flat, paved trail.
  • Free T-Shirt for registered participants! (Register by Octover 2nd to guarantee a free t-shirt)
  • Check-in on race day, October 19th, between 7:30-8:30AM (Pre-registration encouraged)
  • Kids' Run 9:00 AM (forms at starting line prior to start time)
  • and 5K 9:30 AM details posted on registration site
  • Walkers (immediately after runners)


CBTF welcomed families to the annual Family Retreat Day at Glen Echo Park, Glen Echo, Maryland on Sunday June 23 for a fun-filled day that offered families a time to come together to enjoy fellowship, activities, and family fun.

Once again, outstanding volunteers provided arts and crafts for the kids while parents attended information and support group sessions.  Elizabeth Wells, MD, Neurologist, Children’s National Medical Center provided vital information in a session entitled, Pediatric Neurologic Sequelae of Brain Tumors: Update on Research and Management in the morning and support groups explored Surviving and Thriving After a Brain Tumor with Katarina Steacey, NP from George Washington University Hospital and brain tumor survivors, Navigating  Brain Tumor Treatment:  How can we Make it a Better Journey?, Debbie Lafond, and Love, Laughter, and Remembering Dealing with Grief and Loss with Debbie Lafond  and Phil Carpenter in the afternoon. Fun activities included the Puppet Company’s Bathtub Pirate puppet show, carousel rides, and a photo booth.  Many thanks to all the wonderful volunteers and medical professionals that make this Family Retreat Day a resounding success!

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