Administrator

Administrator

The annual Be AMYazing Triathlon for kids was held on May 11, 2014 and the event started at Ridge Heights Pool. This year marked the fourth memorial event. The event was founded by South Lakes High School seniors, Olivia Wolfe, Han-nah Becker, and Kacey Hirshfield. Amy’s dear school friends have played a sig-nificant role in helping keep Amy’s memory alive since she lost her battle in 2008 when they were classmates at Hunter Woods Elementary School. Funds raised from this event will be dedicated to research for diffuse intrinsic pontine glioma..

Watch this recent WUSA 9 video.

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

2013 Run with the Saints

2013 Casino Gala

Clarksburg Dance Marathon

DIPG: Clinical Features and Ongoing Discoveries

Links and Resources

...and more!

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

2013 Superheroes 5K and Kids' Fun Run

Geoff Cornman Golf Tournament

Tennis for Tumors

Grant Awards 2013-2014

Links and Resources

...and more!

CBTF welcomed families to the annual Family Retreat Day at Glen Echo Park, Glen Echo, Maryland on Sunday June 23 for a fun-filled day that offered families a time to come together to enjoy fellowship, activities, and family fun.

Once again, outstanding volunteers provided arts and crafts for the kids while parents attended information and support group sessions.  Elizabeth Wells, MD, Neurologist, Children’s National Medical Center provided vital information in a session entitled, Pediatric Neurologic Sequelae of Brain Tumors: Update on Research and Management in the morning and support groups explored Surviving and Thriving After a Brain Tumor with Katarina Steacey, NP from George Washington University Hospital and brain tumor survivors, Navigating  Brain Tumor Treatment:  How can we Make it a Better Journey?, Debbie Lafond, and Love, Laughter, and Remembering Dealing with Grief and Loss with Debbie Lafond  and Phil Carpenter in the afternoon. Fun activities included the Puppet Company’s Bathtub Pirate puppet show, carousel rides, and a photo booth.  Many thanks to all the wonderful volunteers and medical professionals that make this Family Retreat Day a resounding success!

In 2008, Amy Boyle’s friends, (age 12) formed Amy’s Amigos in tribute to their friend Amy Boyle, a classmate that was battling a brain tumor.  Amy was a high spirited young lady that was athletic and enjoyed life.  In 2011 after Amy’s death, Amy’s Amigos held their first Reston Youth League Triathlon in the hope that funds raised would support important research initiatives.  On May 12, 2013, the Be AMYazing event was held at South lakes High School and was met with the same enthusiasm and was sold out ahead of the event date! Amy’s friends with the support of the community has raised $32,000 over the past three years. This year $16,000 was raised!

CBTF and families thank AMYazing, Reston Youth Triathlon, sponsors, and supporters of this exciting event!

On May 17, Dwellus Group gave back to the community again and hosted their 4th Annual Dwellus Charity Golf Tournament on behalf of the Childhood Brain Tumor Foundation and in honor of Jackson! The event was held at the Pleasant Valley Golf Course, Chantilly Virginia and was a great success, raising over $9,000.  Sponsors included, Chick-fil-A, First Savings Mortgage, Champion Title, George Mason Mortgage, LLX, Keller Williams Realty, Thadson Flooring, 123 Junk, Cindy Zook Associates, Finding Solutions Counseling Centers, Alliant, and HMS Home Warranty.  A continental breakfast, lunch, goodie bags, silent auction, and raffles were included as part of the day.  It was a beautiful day and the efforts of everyone involved were greatly appreciated.  Special thanks to Ryan Zook and the Dwellus Group!

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

2013 Be AMYazing Reston Youth Triathlon

Dwellus Charity Golf Tournament

2013 Family Retreat Day

Abstract: Survey of long-term follow-up programs int he United States for survivors of childhood brain tumors

Links and Resources

...and more!

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

CBTF's Family Retreat Day

Grant Programs funded by CBTF

VFW Ladies' Auxiliary Donation

Tennis for Tumors

Links and Resources

...and more!

The article you requested has been retracted. We apologize for the inconvenience.

 

The Childhood Brain Tumor Foundation (CBTF) has funded state-of-the-art research and supported conferences for pediatric brain tumors over the past 24 years. Grant Applications submitted during our open Grant Application period are are reviewed thoroughly by our dedicated team of renown scientific advisors. CBTF selects only the highest quality research for pediatric brain tumors.

  • Our process is based on National Institutes of Health review standards, led by Dr. Roger J. Packer, founding advisor and chairman of the advisory.
  • Advisors are assigned applications to ensure there are no conflicts of interest.
  • Our dedicated advisors voluntarily review, score, and summarize each application.
  • The Advisors hold a teleconference call to discuss the applications.
  • They make recommendations to CBTF after the full review.
  • The CBTF Board discusses the recommendations and overall review scores/summaries and collective comments before voting on which applications will be selected for funding.

Each year, we receive many outstanding applications, but cannot fund all. It is through the support of private and public donations that CBTF is able to fund grant programs.

Please see the attached file for a list of grants funded by CBTF.

With your support, together, we will strive to find a cure for childhood brain tumors.

The 2018 grant application process is now open! The submission deadline is Monday, March 19, 2018. Visit the Research Grants site for details.

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