Administrator

Administrator

CBTF welcomed families to the annual Family Retreat Day at Glen Echo Park, Glen Echo, Maryland on Sunday June 23 for a fun-filled day that offered families a time to come together to enjoy fellowship, activities, and family fun.

Once again, outstanding volunteers provided arts and crafts for the kids while parents attended information and support group sessions.  Elizabeth Wells, MD, Neurologist, Children’s National Medical Center provided vital information in a session entitled, Pediatric Neurologic Sequelae of Brain Tumors: Update on Research and Management in the morning and support groups explored Surviving and Thriving After a Brain Tumor with Katarina Steacey, NP from George Washington University Hospital and brain tumor survivors, Navigating  Brain Tumor Treatment:  How can we Make it a Better Journey?, Debbie Lafond, and Love, Laughter, and Remembering Dealing with Grief and Loss with Debbie Lafond  and Phil Carpenter in the afternoon. Fun activities included the Puppet Company’s Bathtub Pirate puppet show, carousel rides, and a photo booth.  Many thanks to all the wonderful volunteers and medical professionals that make this Family Retreat Day a resounding success!

In 2008, Amy Boyle’s friends, (age 12) formed Amy’s Amigos in tribute to their friend Amy Boyle, a classmate that was battling a brain tumor.  Amy was a high spirited young lady that was athletic and enjoyed life.  In 2011 after Amy’s death, Amy’s Amigos held their first Reston Youth League Triathlon in the hope that funds raised would support important research initiatives.  On May 12, 2013, the Be AMYazing event was held at South lakes High School and was met with the same enthusiasm and was sold out ahead of the event date! Amy’s friends with the support of the community has raised $32,000 over the past three years. This year $16,000 was raised!

CBTF and families thank AMYazing, Reston Youth Triathlon, sponsors, and supporters of this exciting event!

On May 17, Dwellus Group gave back to the community again and hosted their 4th Annual Dwellus Charity Golf Tournament on behalf of the Childhood Brain Tumor Foundation and in honor of Jackson! The event was held at the Pleasant Valley Golf Course, Chantilly Virginia and was a great success, raising over $9,000.  Sponsors included, Chick-fil-A, First Savings Mortgage, Champion Title, George Mason Mortgage, LLX, Keller Williams Realty, Thadson Flooring, 123 Junk, Cindy Zook Associates, Finding Solutions Counseling Centers, Alliant, and HMS Home Warranty.  A continental breakfast, lunch, goodie bags, silent auction, and raffles were included as part of the day.  It was a beautiful day and the efforts of everyone involved were greatly appreciated.  Special thanks to Ryan Zook and the Dwellus Group!

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

2013 Be AMYazing Reston Youth Triathlon

Dwellus Charity Golf Tournament

2013 Family Retreat Day

Abstract: Survey of long-term follow-up programs int he United States for survivors of childhood brain tumors

Links and Resources

...and more!

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

CBTF's Family Retreat Day

Grant Programs funded by CBTF

VFW Ladies' Auxiliary Donation

Tennis for Tumors

Links and Resources

...and more!

The article you requested has been retracted. We apologize for the inconvenience.

 

The Childhood Brain Tumor Foundation (CBTF) has funded state-of-the-art research and supported conferences for pediatric brain tumors over the past 22 years. Grant Applications submitted during our open Grant Application period are are reviewed thoroughly by our dedicated team of renown scientific advisors. CBTF selects only the highest quality research for pediatric brain tumors.

  • Our process is based on National Institutes of Health review standards, led by Dr. Roger J. Packer, founding advisor and chairman of the advisory.
  • Advisors are assigned applications to ensure there are no conflicts of interest.
  • Our dedicated advisors voluntarily review, score, and summarize each application.
  • The Advisors hold a teleconference call to discuss the applications.
  • They make recommendations to CBTF after the full review.
  • The CBTF Board discusses the recommendations and overall review scores/summaries and collective comments before voting on which applications will be selected for funding.

Each year, we receive many outstanding applications, but cannot fund all. It is through the support of private and public donations that CBTF is able to fund grant programs.

Please see the attached file for a list of grants funded by CBTF.

With your support, together, we will strive to find a cure for childhood brain tumors.

The 2018 grant application process will open in November 2017 with a mid-March 2018 submission date. Visit the link for details.

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

Dance Marathon in Memory of Sam Moore,

Walkin With Gabriella raises $11K,

Second Chance Band Concert raises $6500,

Family Retreat Day scheduled for 2013,

Links and Resources

...and more!

Tennis for Tumors held their 7th Annual Tennis tournament on May 4, 2013.  It was a great success!

Tennis for Tumors' primary fundraiser, a tennis tournament, is held each year at the Beerman Family Tennis Complex.  Brittany and her mother, Cindy are CBTF representatives and all funds are raised for pediatric brain tumor research and the Brittany Truitt Scholarship.   

On Friday, September 28, 2012, Geoff Cornman’s friends and family came together to honor his memorial. Geoff was an avid golfer and his friends carry on the tradition every year of celebrating Geoff’s life. Nick Good, Doug Grove, Jerry Lopynski, John Mercil, and Rex Thomas organize a fantastic event, thoroughly enjoyed by all, while supporting pediatric brain tumor research. This year, Jeanne Young, CBTF President, addressed the supporters, thanked them and reflected on how much support for the event means to families, knowing that research initiatives are being funded. Thanks to the guys and all supporters!!

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