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The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

2013 Run with the Saints

2013 Casino Gala

Clarksburg Dance Marathon

DIPG: Clinical Features and Ongoing Discoveries

Links and Resources

...and more!

Years of dedicated efforts have been voluntarily and freely given to sustain the Childhood Brain Tumor Foundation and its mission. The supporters, renown advisory, and countless volunteers that have embraced our mission to fund research in hope of cures and improved quality of life for children affected have helped us succeed in funding excellent research programs over the past twenty years.

Download the flyer and RSVP form HERE.

Casino Games • Silent Auction • Buffet Dinner • Live Band and Dancing

Join us for the 20th annual Casino Gala at luxurious Manor Country Club in Rockville, MD and help us raise funds to support our fight against childhood brain tumors! This annual event is held in honor of all the children who have fought against this devastating disease. Support for this fund-raising event will benefit patients and our funding initiatives for research programs. The gala is an action-packed event with many activities:

  • Buffet Dinner
  • Casino Games
  • Silent Auction
  • Live Music and Dancing
  • Open Bar

Save the Date:

When: Saturday, November 22, 2014
Hours: 7:00 PM - 11:00 PM
Where: Manor Country Club, Rockville, Maryland
Activities: Games, buffet dinner, live music, open bar, terrific silent auction!

 

The casino is managed by our expert blackjack dealers and pit boss craps to make the games exciting.  We look forward to seeing our supporters in November.  If you know of potential sponsors please have them e-mail the Foundation:  This email address is being protected from spambots. You need JavaScript enabled to view it.

Best wishes for a safe and happy holiday season.

 

 

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

2013 Superheroes 5K and Kids' Fun Run

Geoff Cornman Golf Tournament

Tennis for Tumors

Grant Awards 2013-2014

Links and Resources

...and more!

CBTF welcomed families to the annual Family Retreat Day at Glen Echo Park, Glen Echo, Maryland on Sunday June 23 for a fun-filled day that offered families a time to come together to enjoy fellowship, activities, and family fun.

Once again, outstanding volunteers provided arts and crafts for the kids while parents attended information and support group sessions.  Elizabeth Wells, MD, Neurologist, Children’s National Medical Center provided vital information in a session entitled, Pediatric Neurologic Sequelae of Brain Tumors: Update on Research and Management in the morning and support groups explored Surviving and Thriving After a Brain Tumor with Katarina Steacey, NP from George Washington University Hospital and brain tumor survivors, Navigating  Brain Tumor Treatment:  How can we Make it a Better Journey?, Debbie Lafond, and Love, Laughter, and Remembering Dealing with Grief and Loss with Debbie Lafond  and Phil Carpenter in the afternoon. Fun activities included the Puppet Company’s Bathtub Pirate puppet show, carousel rides, and a photo booth.  Many thanks to all the wonderful volunteers and medical professionals that make this Family Retreat Day a resounding success!

In 2008, Amy Boyle’s friends, (age 12) formed Amy’s Amigos in tribute to their friend Amy Boyle, a classmate that was battling a brain tumor.  Amy was a high spirited young lady that was athletic and enjoyed life.  In 2011 after Amy’s death, Amy’s Amigos held their first Reston Youth League Triathlon in the hope that funds raised would support important research initiatives.  On May 12, 2013, the Be AMYazing event was held at South lakes High School and was met with the same enthusiasm and was sold out ahead of the event date! Amy’s friends with the support of the community has raised $32,000 over the past three years. This year $16,000 was raised!

CBTF and families thank AMYazing, Reston Youth Triathlon, sponsors, and supporters of this exciting event!

On May 17, Dwellus Group gave back to the community again and hosted their 4th Annual Dwellus Charity Golf Tournament on behalf of the Childhood Brain Tumor Foundation and in honor of Jackson! The event was held at the Pleasant Valley Golf Course, Chantilly Virginia and was a great success, raising over $9,000.  Sponsors included, Chick-fil-A, First Savings Mortgage, Champion Title, George Mason Mortgage, LLX, Keller Williams Realty, Thadson Flooring, 123 Junk, Cindy Zook Associates, Finding Solutions Counseling Centers, Alliant, and HMS Home Warranty.  A continental breakfast, lunch, goodie bags, silent auction, and raffles were included as part of the day.  It was a beautiful day and the efforts of everyone involved were greatly appreciated.  Special thanks to Ryan Zook and the Dwellus Group!

Our friends at John Paul II, event organizers, and eager participants in Houston, Texas are getting ready for the annual Run with the Saints 5K.

In loving memory of Lauren Lockard. The 5k race will be on Saturday, November 1, 2014 at 8:00 AM. There will also be a "Kids' K" that will begin at 7:30 AM.

This year, in the US, over 13,000 people will die from brain, spinal cord, or other nervous system tumors. Many of these victims are young children. Aggressive research supported by the Childhood Brain Tumor Foundation is helping to reduce this tragic number.

In 1999, a vibrant and talented sixth-grade student at John Paul II Catholic School in Houston, Texas was taken by this disease. Lauren Lockard’s family, friends and faculty have vowed to fight this disease while keeping Lauren’s memory alive through a spirited community event. Continuing this promise, Date to be determined, John Paul II Catholic School and the friends and family of Lauren Lockard will be hold the next Annual Run with the Saints Lauren Lockard Memorial 5K Run. Proceeds from this event will directly benefit the Childhood Brain Tumor Foundation and the John Paul II athletic program, which was very important to Lauren.

Run with the Saints is one of the few races run in West Harris County, Texas! The 5K course winds through the beautiful tree-lined neighborhood streets around John Paul II Catholic School, near Briar Forest Road and Highway 6. Parking is available on streets around the school.

This 5K event allows our community to demonstrate extraordinary strength and camaraderie. Everyone is welcome to come and participate in the 5K by running, walking and volunteering date to be determined, so please invite your friends.

Click here to visit the Run with the Saints home page and register to race, volunteer, or make a donation.

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

2013 Be AMYazing Reston Youth Triathlon

Dwellus Charity Golf Tournament

2013 Family Retreat Day

Abstract: Survey of long-term follow-up programs int he United States for survivors of childhood brain tumors

Links and Resources

...and more!

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

CBTF's Family Retreat Day

Grant Programs funded by CBTF

VFW Ladies' Auxiliary Donation

Tennis for Tumors

Links and Resources

...and more!

Thanks to Our Sponsors