Administrator

Administrator

Physical Activity for Cognitive Effects - NEW RESEARCH STUDY
 
A new protocol is open at the Pediatric Oncology Branch of the National Cancer Institute for children, ages 8 to 17 years, who have had a brain tumor that was treated with radiation at least 2 years ago. This study is evaluating whether a novel home physical activity program improves cognitive late effects, which may include difficulties with attention, memory, and processing speed. Previous research has shown that increases in physical activity can result in improvements in brain function and cognitive skills.
 
This study will involve a pre-study evaluation at the NIH (a short cognitive evaluation, fitness testing, and a blood draw), a 12-week home physical activity program (using an activity monitor and website to track one’s progress), and a follow-up evaluation at the NIH. Eligible children will be randomly assigned to either a group getting the physical activity program or a group doing their usual physical activity. After completing the follow-up evaluation, the group first doing their usual activities will then do the physical activity program while the other group will be asked to continue doing the program for 12 more weeks on their own. All will complete a final brief cognitive assessment. We hope that the home program, which we will plan to fit to your child’s favorite physical activities, will help to improve cognitive functions, as well as physical health, and be fun to do. We also will offer a small compensation for children who complete the study, and they will get to keep their activity monitors.
 
If you might be interested in participating in this study and would like more information, please email Dr. Pam Wolters (This email address is being protected from spambots. You need JavaScript enabled to view it.) or Brittany Abel (This email address is being protected from spambots. You need JavaScript enabled to view it.) or call us at 301-496-0561. We look forward to hearing from you!
It was our pleasure to hold our 19th fundraising Casino Gala on Saturday, November 23, 2013 at the beautiful Manor Country Club in Rockville, Maryland.
 
This annual event is held in honor of all of the children who have fought or have a brain tumor diagnosis. The evening included many activities: buffet dinner, casino games, silent auction, live music and dancing, and an open-bar. The casino was packed with supporters playing blackjack and craps. The auction included great items and many drew competitive bids.
 
Special thanks to all of our event supporters and sponsors: Whittle Physical Therapy, Herson’s Honda, Kelley Bula Memorial Scholarship, several dedicated anonymous Hero Sponsors.
 
This year, our musical entertainment was provided by New York group, The Giant Flying Turtles. We are deeply appreciative of the dedicated efforts of our longstanding volunteers and new volunteers. Each year, our Casino dealers, Anne Gallagher (flowers), Owen Lyon, Yvonne and Michael Soghomonian, and Board members volunteer their time to make the evening a great success. Special thanks to return volunteers Mandy Bell, Tricia Whittles and Jillian Vardy; and this year’s support efforts from Kathleen Bula.
 
Our November 22, 2014 Gala marks our 20th year of funding scientific and/or clinical research, providing educational materials and conferences or Family Retreat Days for families. The event will again be held at the exquisite Manor Country Club. We look forward to seeing our regular event supporters and new supporters this year. If you know in advance that you plan to attend let us know ahead.

The annual Be AMYazing Triathlon for kids was held on May 11, 2014 and the event started at Ridge Heights Pool. This year marked the fourth memorial event. The event was founded by South Lakes High School seniors, Olivia Wolfe, Han-nah Becker, and Kacey Hirshfield. Amy’s dear school friends have played a sig-nificant role in helping keep Amy’s memory alive since she lost her battle in 2008 when they were classmates at Hunter Woods Elementary School. Funds raised from this event will be dedicated to research for diffuse intrinsic pontine glioma..

Watch this recent WUSA 9 video.

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

2013 Run with the Saints

2013 Casino Gala

Clarksburg Dance Marathon

DIPG: Clinical Features and Ongoing Discoveries

Links and Resources

...and more!

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

2013 Superheroes 5K and Kids' Fun Run

Geoff Cornman Golf Tournament

Tennis for Tumors

Grant Awards 2013-2014

Links and Resources

...and more!

CBTF welcomed families to the annual Family Retreat Day at Glen Echo Park, Glen Echo, Maryland on Sunday June 23 for a fun-filled day that offered families a time to come together to enjoy fellowship, activities, and family fun.

Once again, outstanding volunteers provided arts and crafts for the kids while parents attended information and support group sessions.  Elizabeth Wells, MD, Neurologist, Children’s National Medical Center provided vital information in a session entitled, Pediatric Neurologic Sequelae of Brain Tumors: Update on Research and Management in the morning and support groups explored Surviving and Thriving After a Brain Tumor with Katarina Steacey, NP from George Washington University Hospital and brain tumor survivors, Navigating  Brain Tumor Treatment:  How can we Make it a Better Journey?, Debbie Lafond, and Love, Laughter, and Remembering Dealing with Grief and Loss with Debbie Lafond  and Phil Carpenter in the afternoon. Fun activities included the Puppet Company’s Bathtub Pirate puppet show, carousel rides, and a photo booth.  Many thanks to all the wonderful volunteers and medical professionals that make this Family Retreat Day a resounding success!

In 2008, Amy Boyle’s friends, (age 12) formed Amy’s Amigos in tribute to their friend Amy Boyle, a classmate that was battling a brain tumor.  Amy was a high spirited young lady that was athletic and enjoyed life.  In 2011 after Amy’s death, Amy’s Amigos held their first Reston Youth League Triathlon in the hope that funds raised would support important research initiatives.  On May 12, 2013, the Be AMYazing event was held at South lakes High School and was met with the same enthusiasm and was sold out ahead of the event date! Amy’s friends with the support of the community has raised $32,000 over the past three years. This year $16,000 was raised!

CBTF and families thank AMYazing, Reston Youth Triathlon, sponsors, and supporters of this exciting event!

On May 17, Dwellus Group gave back to the community again and hosted their 4th Annual Dwellus Charity Golf Tournament on behalf of the Childhood Brain Tumor Foundation and in honor of Jackson! The event was held at the Pleasant Valley Golf Course, Chantilly Virginia and was a great success, raising over $9,000.  Sponsors included, Chick-fil-A, First Savings Mortgage, Champion Title, George Mason Mortgage, LLX, Keller Williams Realty, Thadson Flooring, 123 Junk, Cindy Zook Associates, Finding Solutions Counseling Centers, Alliant, and HMS Home Warranty.  A continental breakfast, lunch, goodie bags, silent auction, and raffles were included as part of the day.  It was a beautiful day and the efforts of everyone involved were greatly appreciated.  Special thanks to Ryan Zook and the Dwellus Group!

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

2013 Be AMYazing Reston Youth Triathlon

Dwellus Charity Golf Tournament

2013 Family Retreat Day

Abstract: Survey of long-term follow-up programs int he United States for survivors of childhood brain tumors

Links and Resources

...and more!

The Neurotransmitter is a semi-annual newsletter published by The Childhood Brain Tumor Foundation.

In this issue:

CBTF's Family Retreat Day

Grant Programs funded by CBTF

VFW Ladies' Auxiliary Donation

Tennis for Tumors

Links and Resources

...and more!

Thanks to Our Sponsors