About CBTF

The Childhood Brain Tumor Foundation (CBTF) is an all-volunteer organization founded in 1994 by families, friends and physicians of children with brain tumors. Our mission is to raise funds for scientific research and heighten public awareness of this most devastating disease and to improve prognosis and quality of life for those that are affected.

CBTF is specific to funding pediatric brain tumor research! All donations are tax-deductible.

Imagine your child diagnosed with a brain tumor. Where would you turn? We're determined to find a cure and offer hope to parents facing heartbreak.

CBTF Beginnings

Founded and incorporated in Virginia, then relocated to Maryland in 1998, the Foundation, a 501(c) (3), strives to meet the goals of our mission. We are dedicated to serving the needs of families and children with brain tumors, in hopes of improving the quality of life and find cures for pediatric brain tumors. Annually, CBTF funds basic science or clinical research for pediatric brain tumors; conferences and other programs.

We provide informational materials on our website and mail other information (nationally and internationally) upon request. If you would like to receive information, need a resource list, referrals to experts for consults, or to join our mailing list, please contact us with your name, address, phone number, and e-mail address. Any personal information we collect is kept private. We do not sell, rent, or distribute our list to anyone.

Some families do submit stories and photographs for our newsletter and they may be posted on our website unless requested otherwise. Stories may be written under a pen name for privacy, if preferred.

Please feel free to contact us:

CBTF
20312 Watkins Meadow Drive
Germantown, MD 20876

Telephone: 301-515-2900
Toll Free: 877-217-4166
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

CBTF is not responsible for the information on the links we have selectively posted and are not endorsements. The information on our website is not a substitute for medical advice. Information may be subject to change.

Board Members

Jeanne P. Young, President**
Carol Cornman, Vice President
Kiren Day, Vice Pres./ Secretary
James M. Young, Treasurer**

Directors

Elizabeth Irvin*
Susan Lyon, R.N.
Mario Martinez, Sr.
Michelle O'Brien, R.N.
Claire Wynn**

Ombudsmen

Gilbert P. Smith, J.D.**
Grace Powers Monaco, J.D.

Special Scientific Advisor

Gil Smith, Ph.D., Bethesda, MD**

Legal Advisor

Frederic Rickles, Esq., NY

Advisor - Survivorship

Debbie Lafond,MS, RNCS, PNP, CPON Children's National Medical Ctr.

Aziza Shad, M.D.
Georgetown University Hospital

* - Founder

** - Founding Board Member

Founding Advisor / Advisory Chairman

Roger J. Packer, M.D.*
pediatric neurologist
Children's National Medical Center
Washington, D.C.

Scientific Advisors

Susan M. Blaney, M.D.
pediatric oncologist
Texas Children's Cancer Center
Houston, TX

Derek Bruce, M.D.
pediatric neurosurgeon

Peter C. Burger, M.D.
neuro-pathologist
Johns Hopkins Medical Center
Baltimore, MD

Kenneth J. Cohen, M.D.
pediatric oncologist
Johns Hopkins Medical Center
Baltimore, MD

Paul G. Fisher, M.D.
pediatric neuro-oncologist
Stanford Cancer Center
Stanford, CA

George Jallo, M.D.
pediatric neurosurgeon
Johns Hopkins University Hospital
Baltimore, MD

Tobey J. MacDonald, M.D.
pediatric oncologist
Aflac Children's Healthcare,
Atlanta, GA

Brian R. Rood, M.D.
pediatric oncologist
Children's National Medical Center
Washington, D.C.

Katherine E. Warren, M.D.
pediatric oncologist
Bethesda, MD

Community Representatives

Jarrod and Cherie Aucoin, LA
(Ali Rose)
Mary T Callahan, TX
Tierney Callahan, TX
(Run with the Saints)
Doug & Lydia DeFeis, FL
Michael Greenspun, MD
Danielle Kerkovich, IL
Kyle Killeen, NJ
Peggy Killeen, NJ
(Kyle's Heroes)
Danielle Leach, MD
Kate Lund, CT
Alyssa Lyon, MD
Cady Lyon, MD
Danielle Lyon, MD

Pat Macy, NY
Barbara Norris, MA
Carol A. Parham, CT
Linda Quackenbush Turner, UT
Pat & Kevin Schlosser, IN
Andrew Schoenfeld, CA
Michael Schoenfeld, DC
Diane Smith, MD
(JKS Spirit Fund)
Brittany Truitt, FL
Cindy Truitt, FL
(Tennis for Tumors)
Nancy Ward, IL
Susan M. Young, MD
Beth Zermani, MA

Biographies

Tobey J. MacDonald, MD
Associate Professor PediatricsDirector, Pediatric Neuro-Oncology Program Following his training in pediatrics, pediatric hematology-oncology and neuro-oncology, Dr. MacDonald has built a career that encompasses clinical, basic and translational research of childhood brain tumors. He has received continuous NIH-sponsored funding support for his research efforts for the past 9 years, which has…
Roger J. Packer, MD
Dr. Roger J. Packer, MD is Senior Vice-President, Center for Neuroscience and Behavioral Medicine, and Chairman of Neurology at the Children’s National Medical Center (CNMC). He is Director of both the Brain Tumor Institute and the Daniel and Jennifer Gilbert Neurofibromatosis Institute. Dr. Packer’s present academic titles include Professor of…
Jeanne P. Young
Mrs. Young is the President and one of the Founding members of the Childhood Brain Tumor Foundation, an all-volunteer nonprofit organization founded in 1994 dedicated to supporting research, heightening awareness, and improving the quality of life for children affected by brain tumors. Her dedication to the cause comes from many…
Peter C. Burger, MD
Born in New Jersey, Dr. Burger grew up in Chicago and attended Oberlin College in Ohio. His medical training began at Northwestern University Medical School in Chicago and completed at Duke University Medical Center, Durham NC after a combined residency in anatomic pathology and fellowship in neuropathology. He remained at…
James M. Young
Mr. James Young, one of the Founding Board Members, is the longstanding Treasurer of the Childhood Brain Tumor Foundation, Inc. His son is a long-term brain tumor survivor, diagnosed in 1991. Mr. Young is grateful that his son, Bryan, has beat the odds and remained stable with a low-grade tumor…
Katherine E. Warren, MD
Dr. Warren received her B.S., in medical technology in 1982 and her M.D., from Tufts University School of Medicine in 1990. She completed a residency in pediatrics at Children's National Medical Center, followed by a fellowship in pediatric oncology at the National Cancer Institute. She is board certified in pediatric…