About CBTF

The Childhood Brain Tumor Foundation (CBTF) is an all-volunteer organization founded by families, friends and physicians of children with brain tumors. Our mission is to raise funds for (pediatric) scientific research, to heighten public awareness of this more devastating disease, and to improve prognosis and quality of life for those that are affected.

All donations are tax-deductible.

We are determined to find a cure and offer hope to parents facing heartbreak.

CBTF Beginnings

Founded and incorporated in Virginia 1994, dissolved.  In 1998, CBTF became incorporated as a Maryland charity.  The Foundation, a 501(c) (3), strives to meet the goals of our mission. We are dedicated to serving the needs of families and children with brain tumors, in hopes of improving the quality of life and find cures for pediatric brain tumors. Annually, CBTF funds basic science or clinical research for pediatric brain tumors, conferences, and other programs.

We provide informational materials on our website and mail other information (nationally and internationally) upon request. If you would like to receive information, need a resource list, referrals to experts for consults, or to join our mailing list, please contact us with your name, address, phone number, and e-mail address. Any personal information we collect is kept private.
 
We do not sell, rent, or distribute our list to anyone.

Some families do submit stories and photographs for our newsletter and they may be posted on our website unless requested otherwise.  Stories may be written under a pen name for privacy, if preferred.

Please feel free to contact us:

CBTF
20312 Watkins Meadow Drive
Germantown, Maryland 20876

Telephone: 301.515.2900
Toll Free: 877.217.4166
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.

CBTF is not responsible for the information on the links we have selectively posted and are not endorsements. The information on our website is not a substitute for medical advice. Information may be subject to change.

Board Members

Jeanne P. Young, President
Carol Cornman, Vice President
Kiren Day, Vice Pres./ Secretary
James M. Young, Treasurer

Directors

Elizabeth Irvin
Susan Lyon, R.N.
Mario Martinez, Sr.
Michelle O'Brien, R.N.
Claire Wynn

Ombudsmen

Gilbert P. Smith, J.D.
Grace Powers Monaco, J.D.

Special Scientific Advisor

Gil Smith, Ph.D., Bethesda, MD

Legal Advisor

Frederic Rickles, Esq., NY

Advisor - Survivorship

Faith Crozier, MSN, CPNP, AC, Children's National Medical Ctr.

Debbie Lafond, DNP, PNP-BC, Children's National Medical Ctr.

Aziza Shad, M.D.
Georgetown University Hospital

 

Founding Advisor / Advisory Chairman

Roger J. Packer, M.D.
pediatric neurologist
Children's National Medical Center
Washington, D.C.

Scientific Advisors

Susan M. Blaney, M.D.
pediatric oncologist
Texas Children's Cancer Center
Houston, TX

Derek Bruce, M.D.
pediatric neurosurgeon

Peter C. Burger, M.D.
neuro-pathologist
Johns Hopkins Medical Center
Baltimore, MD

Kenneth J. Cohen, M.D.
pediatric oncologist
Johns Hopkins Medical Center
Baltimore, MD

Paul G. Fisher, M.D.
pediatric neuro-oncologist
Stanford Cancer Center
Stanford, CA

George Jallo, M.D.
pediatric neurosurgeon
Johns Hopkins University Hospital
Baltimore, MD

Tobey J. MacDonald, M.D.
pediatric oncologist
Aflac Children's Healthcare,
Atlanta, GA

Eva Perdahl, M.D., Ph.D
Pediatric Oncologist

Brian R. Rood, M.D.
pediatric oncologist
Children's National Medical Center
Washington, D.C.

Katherine E. Warren, M.D.
pediatric oncologist
Bethesda, MD

Community Representatives

Jarrod and Cherie Aucoin, LA
(Ali Rose)
Mary T Callahan, TX
Tierney Callahan, TX
(Run with the Saints)
Doug & Lydia DeFeis, FL
Michael Greenspun, MD
Danielle Kerkovich, IL
Kyle Killeen, NJ
Peggy Killeen, NJ
(Kyle's Heroes)
Danielle Leach, MD
Kate Lund, CT
Alyssa Lyon, MD
Cady Lyon, MD
Danielle Lyon, MD


Barbara Norris, MA
Carol A. Parham, CT
Linda Quackenbush Turner, UT
Pat & Kevin Schlosser, IN
Andrew Schoenfeld, CA
Michael Schoenfeld, DC
Diane Smith, MD
(JKS Spirit Fund)
Brittany Truitt, FL
Cindy Truitt, FL
(Tennis for Tumors)
Nancy Ward, IL
Susan M. Young, MD
Beth Zermani, MA

 

Thanks to Our Sponsors